Support NetworksThe following is a list of support networks and organizations whose mission is to provide information, research, and support to persons with specific visual impairments, and diseases.
The Achromatopsia NetworkThis is an information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.
All About Vision: Virtually Everything in SightAll About Vision provides a wealth of information on many topics related to vision. It includes information on: contact lenses, LASIK & Vision surgeries, eyeglasses, sunglasses, eye exams, visual conditions, cataracts, low vision, computer vision, sports vision, eye safety, nutrition & eyes, children's vision, teens, vision over 40, vision over 60, cosmetic eye procedures, vision insurance, resources and videos.
American Association of Pediatric Ophthalmology and StrabismusThe goals of AAPOS are to advance the quality of children's eye care, support the training of pediatric ophthalmologists, support research activities in pediatric ophthalmology, and advance the care of adults with strabismus.
American Diabetes AssociationsPromotes knowledge of diabetes through public and professional education. Seeks to prevent and cure diabetes and to improve the lives of all people affected by diabetes.
American Nystagmus NetworkAmerican Nystagmus Network is a non-profit corporation seeking to improve the quality of life for all persons and families affected by nystagmus, through organized community support, education and public awareness.
Angelman Syndrome FoundationThe Angelman Syndrome Foundation provides information about Angelman syndrome and publishes a monthly newsletter, Voices of Angels.
Association for Macular Diseases The Association for Macular Diseases provides support, resources and assistance to individuals with macular disease, their caregivers, and the professional community.
BCM Families FoundationBCM Families Foundation is a non-profit organization whose mission is to eradicate Blue Cone Monochromacy, a rare genetic x-linked disorder, by supporting the most promising biomedical and scientific research that will lead to a cure.
BrightFocus FoundationOffers educational services pertaining to conditions that affect vision or brain function, including glaucoma and macular degeneration. Hosts and records online chats. Offers a toll-free hotline for listening to chats.
Canadian National Institute for the BlindThe Canadian National Institute for the Blind provides information regarding eye diseases and living with vision loss. CNIB includes information about eyes including eye conditions, eye care, eye safety as well as the opportunity to "ask the expert". The Living with Vision Loss section includes resources on independent living, learning and leisure, safe travel, how-to videos, braille, and guide dogs. Resources also include projects, research grants and awards, and funded projects.
Charge Syndrome Foundation, Inc.Charge Syndrome Foundation, Inc. provides support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and promote awareness and research regarding its identification, cause, and management.
Children's Glaucoma Foundation Children's Glaucoma Foundation is a nonprofit organization dedicated to supporting programs for children with glaucoma.
FOCUS: For Our Children’s Unique SightFOCUS: For Our Children’s Unique Sight provides information, education, and support to those affected by optic nerve hypoplasia and septo optic dysplasia worldwide.
Foundation Fighting BlindnessFunds research to find treatments and cures for retinal degenerative diseases, including retinitis pigmentosa, macular degeneration, and Usher syndrome. Provides information and referral services.
Glaucoma Research FoundationThe Glaucoma Research Foundation is a national non-profit organization dedicated to finding a cure for glaucoma. Funds glaucoma research worldwide.
ICAN ICAN a voluntary non-profit organization of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia.
International Foundation for Optic Nerve Disease (IFOND)The International Foundation for Optic Nerve Disease (IFOND) is a website dedicated to the promotion of research into the causes, prevention, and treatment of optic nerve disease and to the dissemination of information about optic nerve disease.
Lions ClubsThe Lions Club is the world's largest service club organization. Their mission is to empower volunteers to serve their communities, meet humanitarian needs, encourage peace and promote international understanding through Lions clubs. For nearly 100 years, their members have worked on projects designed to prevent blindness, restore eyesight and improve eye health and eye care for hundreds of millions of people worldwide.
Low Vision GatewayThe Low Vision Gateway provides points to access information regarding low vision and blindness. The site offers information on low vision devices, professional and parent organizations and many other vision-specific issues for both children and adults.
Macular Degeneration FoundationThe Macular Degeneration Foundation is dedicated to those who have and will develop macular degeneration. It offers the latest information, news, hope, and encouragement. Includes links to resources such as Low Vision Centers, Therapists, Physicians, and Support Group.
National Keratoconus Foundation (NKCF)Increases the awareness and understanding of keratoconus by providing information to patients, their families, and eye-care professionals. Maintains a patient registry and physician referral, organizes support and discussion groups, and supports scientific research.
National Organization for Rare DisordersThe National Organization for Rare Disorders (NORD) is a nonprofit organization representing all Americans affected by rare diseases. It provides information for patients and families (assistance programs, information center, online communities, NORD meetings, clinical trials, patient organizations), for medical professions (research grants and resources), for industry, and rare disease information.
National Organization for Albinism and Hypopigmentation NOAHNOAH is a non-profit organization that offers information and support to people with albinism, their families and the professionals who work with them. Publishes a quarterly magazine, Albinism InSight. Educates the public and professionals about albinism and encourages research. Offers information and support to individuals with albinism and their families. Provides services through local chapters, an online community, and biannual national conferences and family summer camps.
Nystagmus NetworkNystagmus Network is a UK charity run by individuals and families affected by nystagmus. Provides patient information, support and scientific research charity for nystagmus in Europe.
Stargardt's DiseaseStargardt's Disease is a web resource that provides information, news, and research specific to Stargardt's Disease.
The Glaucoma FoundationProvides free literature and referrals to the public, available through a toll free worldwide hotline: 1-800-GLAUCOMA. Promotes and funds research into the causes of glaucoma and potential cures for the disease, and funds public education projects to provide information about glaucoma and the importance of early detection and treatment.
Vision Research ROPARD FoundationVision Research ROPARD (Retinopathy of Prematurity and Related Diseases) is a website whose focus is on ROP, PFVS (persistent fetal vascular syndrome, retinoschisis, and FEVR (familial exudative vitreoretinopathy). They offer the most current information on all pediatric retinal diseases.
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History of vi
Visual Impairments
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compensatory skills
Guiding Principles Functional Skills Community Based Experiences Concepts to Teach Organization & Study Skills Time Management Virtual Instruction Movies & Assemblies Lectures & Instruction Board Work (Chalk, White, etc.) Daily Schedule Morning Meeting Weather Check Dramatic Play Blocks Numbers & Counting Cranmer Abacus Instruction Algebra Geometry & Spatial Sense Measurement & Data Early Literacy Experiences Create Tactual Books Reading Instruction Reading Efficiency Science Adaptations Social Studies Adaptations Accessible Educational Materials Individual Schedules & Communication Cards Adjust Lighting Large Print Optical Devices for Near Optical Devices for Distance Optical Device Use Photocopying Font Legibility Increase Contrast Pictures & Worksheets Keyboarding Instruction Word Processing and Shortcuts Navigate Computer w/o a Mouse Braille Code Braille Instruction Braille Instruction Materials Writing Braille Summer Reading (braille) Signature & Handwriting Nemeth Braille Code Tactile Graphics Guidelines Creating Tactile Graphics Tactile Graphics Instruction Teacher Made Materials Labeling System assistive technology
Overview of Assistive Technology VI AT Resources Non-Optical Low Vision Devices Video Magnifiers Video Magnifier Instruction Screen Enlargement & Readers Low/Med. Tech Tactual Devices Notetaker Instruction Braillewriter Repair Tactile Graphics Technology Braille Technology Auditory Access Devices Accessing Audio Books iPads as Instructional Tools Making iOS Device Accessible iOS Accessibility Resources VoiceOver Apps for VI Note Taking apps Apps for Accessing Books Identification Apps Navigation & Location Apps Braille Apps Magnifier Apps Sound Making Apps Cause & Effect Apps Vision Skills Apps Apps for Early Learning Read to Me Story Apps Apps for Communication Android Apps for VI sensory efficiency
Sensory Input Encourage Use of Vision Sensory Area & Rooms Lightbox Use Sensory Activities for Students with Multiple Disabilities Sensory Tables Visual Efficiency Skills Visual Attend and Scan Activities Visual Tracking Activities Visual Discrimination Activities Visual Motor Activities Tactual Readiness Developing Skillful Hands Auditory Readiness Listening Skill Instruction independent living
orientation & Mobility
career education
recreation & Leisure
self determination
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