SUPPORT NETWORKS
By: Carmen Willings
teachingvisuallyimpaired.com The following is a list of support networks and organizations whose mission is to provide information, research and support to persons with specific visual impairments and diseases. |
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About
Hi! I'm Carmen Willings. Welcome to my website! I developed this web resource to support fellow TVI's and to educate those new to the field of visual impairments in how to best support students who are blind or visually impaired. Read More
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American Association of Pediatric Ophthalmology and StrabismusThe goals of AAPOS are to advance the quality of children's eye care, support the training of pediatric ophthalmologists, support research activities in pediatric ophthalmology, and advance the care of adults with strabismus.
The Achromatopsia NetworkThis is an information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.
All About Vision: Virtually Everything in SightAll About Vision provides a wealth of information on many topics related to vision. It includes information on: contact lenses, LASIK & Vision surgeries, eyeglasses, sunglasses, eye exams, visual conditions, cataracts, low vision, computer vision, sports vision, eye safety, nutrition & eyes, children's vision, teens, vision over 40, vision over 60, cosmetic eye procedures, vision insurance, resources and videos.
American Nystagmus NetworkAmerican Nystagmus Network is a non-profit corporation seeking to improve the quality of life for all persons and families affected by nystagmus, through organized community support, education and public awareness.
Angelman Syndrome FoundationThe Angelman Syndrome Foundation provides information about Angelman syndrome and publishes a monthly newsletter, Voices of Angels.
Association for Macular Diseases The Association for Macular Diseases provides support, resources and assistance to individuals with macular disease, their caregivers, and the professional community.
BCM Families FoundationBCM Families Foundation is a non-profit organization whose mission is to eradicate Blue Cone Monochromacy, a rare genetic x-linked disorder, by supporting the most promising biomedical and scientific research that will lead to a cure.
Canadian National Institute for the BlindThe Canadian National Institute for the Blind rovides information regarding eye diseases and living with vision loss. CNIB includes information about eyes including eye conditions, eye care, eye safety as well as the opportunity to "ask the expert". The Living with Vision Loss section includes resources on independent living, learning and leisure, safe travel, how-to videos, braille, and guide dogs. Resources also include projects, research grants and awards, and funded projects.
Charge Syndrome foundation, Inc.Charge Syndrome foundation, Inc. provides support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.
Children's Glaucoma Foundation Children's Glaucoma Foundation is a nonprofit organization dedicated to supporting programs for children with glaucoma.
FOCUS: For Our Children’s Unique SightFOCUS: For Our Children’s Unique Sight provides information, education and support to those affected by optic nerve hypoplasia and septo optic dysplasia world wide.
Foundation Fighting BlindnessThe urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. For a $25.00 annual membership fee, FFB offers information and referral services for affected individuals and their families as well as for doctors and eye care professionals. Their national conference is usually held every year.
Glaucoma Research FoundationThe Glaucoma Research Foundation is a national non-profit organization dedicated to finding a cure for glaucoma. Funds glaucoma research world-wide.
ICAN ICAN a voluntary non-profit organization of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia.
International Foundation for Optic Nerve Disease (IFOND)The International Foundation for Optic Nerve Disease (IFOND) is a website dedicated to the promotion of research into the causes, prevention, and treatment of optic nerve disease, and to the dissemination of information about optic nerve disease.
Lions ClubsThe Lions Club is the world's largest service club organization. Their mission is to empower volunteers to serve their communities, meet humanitarian needs, encourage peace and promote international understanding through Lions clubs. For nearly 100 years, their members have worked on projects designed to prevent blindness, restore eyesight and improve eye health and eye care for hundreds of millions of people worldwide.
Low Vision GatewayThe Low Vision Gateway provides points to access information regarding low vision and blindness. The site offers information on low vision aides, professional and parent organizations and many other vision specific issues for both children and adults.
Macular DegenerationMacular Degeneration is a support organization for The Foundation Fighting Blindness which combines the strength of the The Foundation's research mission to find treatments and cures for Macular Degeneration with MDI's mission to help people lead independent and rewarding lives.
Macular Degeneration FoundationThe Macular Degeneration Foundation is dedicated to those who have and will develop macular degeneration. Offers the latest information, news, hope and encouragement. Includes links to resources such as Low Vision Centers, Therapists, Physicians and Support Group.
The National Eye InstituteThe National Eye Institute (NEI), part of the National Institutes of Health, leads the federal government's research on the visual system and eye diseases. NEI supports basic and clinical science programs that result in the development of sight -saving treatments. Resources include a clinical studies database, publications, and materials list, photos, images and videos as well as statistics and data.
National Organization for Rare DisordersThe National Organization for Rare Disorders (NORD) is a nonprofit organization representing all Americans affected by rare diseases. It provides information for patients and families (assistance programs, information center, online communities, NORD meetings, clinical trials, patient organizations), for medical professions (research grants and resources), for industry, and rare disease information.
NOAHNOAH is a non-profit organization that offers information and support to people with albinism, their families and the professionals who work with them. Publishes a quarterly magazine, Albinism InSight.
Nystagmus NetworkNystagmus Network is a UK charity run by individuals and families affected by nystagmus. Provides patient information, support and scientific research charity for nystagmus in Europe.
Stargardt's DiseaseStargardt's Disease is a web resource that provides information, news and research specific to Stargardt's Disease.
Vision Research ROPARD FoundationVision Research ROPARD (Retinopathy of Prematurity and Related Diseases) is a website whose focus is on ROP, PFVS (persistent fetal vascular syndrome, retinoschisis, and FEVR (familial exudative vitreoretinopathy). They offer the most current information on all pediatric retinal diseases.
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