Support Networks for Visual Impairment

Carmen Willings
teachingvisuallyimpaired.com
Updated June 17, 2025
​This directory highlights leading organizations that support individuals and families affected by specific visual conditions through information, research, advocacy, and community.

Genetic & Rare Conditions

​Retinal & Macular Conditions

​Childhood & Pediatric Eye Care

​Eye Movement Disorders

  • American Nystagmus Network (ANN) – Offers community support and public awareness for nystagmus.
  • Nystagmus Network (UK) – UK-based group offering resources and research connections on nystagmus.

​Corneal & Structural Eye Disorders

  • National Keratoconus Foundation (NKCF) – Promotes awareness and treatment research for keratoconus.
  • International Foundation for Optic Nerve Disease (IFOND) – Aims to promote research and awareness for optic nerve disorders.

​Broader Vision Loss & Prevention

  • American Diabetes Association – Offers programs and guidance on diabetic eye conditions, including diabetic retinopathy.
  • All About Vision – A comprehensive eyewear, ophthalmology, low-vision, and optical resource hub.
  • Canadian National Institute for the Blind ​(CNIB) – A wide-ranging source of supports for Canadians living with visual impairment.
  • Foundation Fighting Blindness (also in Retinal & Macular)
  • Glaucoma Research Foundation – Fuels research for glaucoma prevention and management.
  • The Glaucoma Foundation – Offers free literature and has a toll-free global hotline.
  • National Organization for Rare Disorders (NORD) – Supports families affected by rare diseases, including rare eye conditions.
  • The Lions Club International – Global volunteer network focusing on blindness prevention and care.
  • Prevent Blindness USA (NEW) – America’s oldest nonprofit dedicated solely to preventing blindness through education, advocacy, and health promotion.

​Pediatric and Infant Vision

  • Blind Babies Foundation (now part of JrBlind) – Early intervention and support for families of infants with visual impairment.

​Additional Notable Resources 

  • American Foundation for the Blind (AFB) – Broad advocacy, research, and support across visual impairment needs.
  • National Federation of the Blind (NFB) – Leading advocacy organization promoting equality and independence for blind individuals.
  • Prevent Blindness USA – Offers early childhood vision screening programs, public awareness campaigns, and eye safety information.

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