The following is a list of support networks and organizations whose mission is to provide information, research, and support to persons with specific visual impairments, and diseases.
The goals of AAPOS are to advance the quality of children's eye care, support the training of pediatric ophthalmologists, support research activities in pediatric ophthalmology, and advance the care of adults with strabismus.
The Achromatopsia Network
This is an information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.
All About Vision provides a wealth of information on many topics related to vision. It includes information on: contact lenses, LASIK & Vision surgeries, eyeglasses, sunglasses, eye exams, visual conditions, cataracts, low vision, computer vision, sports vision, eye safety, nutrition & eyes, children's vision, teens, vision over 40, vision over 60, cosmetic eye procedures, vision insurance, resources and videos.
American Nystagmus Network
American Nystagmus Network is a non-profit corporation seeking to improve the quality of life for all persons and families affected by nystagmus, through organized community support, education and public awareness.
The Angelman Syndrome Foundation provides information about Angelman syndrome and publishes a monthly newsletter, Voices of Angels.
Association for Macular Diseases
The Association for Macular Diseases provides support, resources and assistance to individuals with macular disease, their caregivers, and the professional community.
BCM Families Foundation
BCM Families Foundation is a non-profit organization whose mission is to eradicate Blue Cone Monochromacy, a rare genetic x-linked disorder, by supporting the most promising biomedical and scientific research that will lead to a cure.
The Canadian National Institute for the Blind provides information regarding eye diseases and living with vision loss. CNIB includes information about eyes including eye conditions, eye care, eye safety as well as the opportunity to "ask the expert". The Living with Vision Loss section includes resources on independent living, learning and leisure, safe travel, how-to videos, braille, and guide dogs. Resources also include projects, research grants and awards, and funded projects.
Charge Syndrome Foundation, Inc. provides support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and promote awareness and research regarding its identification, cause, and management.
Children's Glaucoma Foundation is a nonprofit organization dedicated to supporting programs for children with glaucoma.
FOCUS: For Our Children’s Unique Sight
FOCUS: For Our Children’s Unique Sight provides information, education, and support to those affected by optic nerve hypoplasia and septo optic dysplasia worldwide.
The Glaucoma Research Foundation is a national non-profit organization dedicated to finding a cure for glaucoma. Funds glaucoma research worldwide.
ICAN a voluntary non-profit organization of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia.
International Foundation for Optic Nerve Disease (IFOND)
The International Foundation for Optic Nerve Disease (IFOND) is a website dedicated to the promotion of research into the causes, prevention, and treatment of optic nerve disease and to the dissemination of information about optic nerve disease.
The Lions Club is the world's largest service club organization. Their mission is to empower volunteers to serve their communities, meet humanitarian needs, encourage peace and promote international understanding through Lions clubs. For nearly 100 years, their members have worked on projects designed to prevent blindness, restore eyesight and improve eye health and eye care for hundreds of millions of people worldwide.
Low Vision Gateway
The Low Vision Gateway provides points to access information regarding low vision and blindness. The site offers information on low vision devices, professional and parent organizations and many other vision-specific issues for both children and adults.
Macular Degeneration Foundation
The Macular Degeneration Foundation is dedicated to those who have and will develop macular degeneration. It offers the latest information, news, hope, and encouragement. Includes links to resources such as Low Vision Centers, Therapists, Physicians, and Support Group.
The National Organization for Rare Disorders (NORD) is a nonprofit organization representing all Americans affected by rare diseases. It provides information for patients and families (assistance programs, information center, online communities, NORD meetings, clinical trials, patient organizations), for medical professions (research grants and resources), for industry, and rare disease information.
NOAH is a non-profit organization that offers information and support to people with albinism, their families and the professionals who work with them. Publishes a quarterly magazine, Albinism InSight.
Nystagmus Network is a UK charity run by individuals and families affected by nystagmus. Provides patient information, support and scientific research charity for nystagmus in Europe.
Stargardt's Disease is a web resource that provides information, news, and research specific to Stargardt's Disease.
Vision Research ROPARD Foundation
Vision Research ROPARD (Retinopathy of Prematurity and Related Diseases) is a website whose focus is on ROP, PFVS (persistent fetal vascular syndrome, retinoschisis, and FEVR (familial exudative vitreoretinopathy). They offer the most current information on all pediatric retinal diseases.
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